Carlos María Romeo Casabona, Director of the Interuniversity Chair of Law and Human Genome. University of the Basque Country, is a member of the Pancanrisk Ethics Advisory Board
You can link the complete interview here
Centre for Genomic Regulation (CGR), Barcelona (Spain) 13-14 December 2016
The partners analyzed the progress of the project, with its advances and needs. Stephan Ossowski explained the development of IT tools to analyse large data sets of cancer, whole genome and whole exome data. Until then, there were about 3400 genomes of cancer patients and 15.000 whole exomes.
In the PCAWG compared about 22 different cancers, but each one of them comes from a specific country that has provided the data for it. Also, In FPGMX had a study scheduled an approach of 200 genes and select the best ones for a validation study.
Also, on December 14th, took place in Barcelona the mini-symposium “Private health data in the cloud”. This event, organized by the PanCanRisk consortium is aimed mainly at research groups and organizations, Students, Project Managers Patients and Legal Advisers interested in the protection of health data, especially genetic data.
Ethics Advisory Board (EAB) of the Consortium PanCanRisk
The EAB of the consortium PanCanRisk had a meeting on the 14Th December 2016, at the Centre for Genomic Regulation (CRG), with the aim of performing an Ethical Screening of the activities of the consortium PanCanRisk and to assess any new ethical issues that might arise during the development of the activities of the consortium.
The members of Ethics Advisory Board (EAB) of the Consortium PanCanRisk are composed by 3 independent and external members with relevant experience in ethics:
– Helena Machado, Research Professor at Centre for Social Studies, University of Coimbra, Portugal
– Carlos Romeu, Tenured Professor of Criminal Law at Univrsity of the Basque Country, Spain
– Vincenzo Lorenzo Pascali, Professor at Facoltà di Medicina e Chirurgia, Sede di Roma. Istituto di sanita’ pubblica, Italy
